Monday, August 11, 2014

Random Update

I would love to get back in the swing of things and blog more. I am not sure if it will happen.  This has been a crazy year. We started driving to houston for medical care, up until last month we have driven to Houston at least once a month.

The beginning of the year we spent 2 months in the hospital between 4 hospitalizations.  One was for pulmonary issues and the others were for GI issues.  The last few months Matt has been very stable.

Next week we will be heading back up to Houston for a 23 hr EEG and then an appointment with the pulmonologist.  Matt hates the hospital so I am hoping the 23 hr EEG will go smoothly.  I keep assuring him no needles but he is still scared.  He was also relieved to find out he would be able to eat in the hospital.

In March Matt had a port a cath placed.  Even though we have to worry about fevers it is nice, it has made life easier.  When we did the immunology labs if we hadn't had his port I don't know how we would have gotten all the blood we needed.

School is starting up again, most of my friends kids are in charter schools that all start tomorrow.  Public schools here start in 2 weeks.   Matt is going to homeschooled this year.  I am not sure when we will be starting. Half of his curriculum is with a co op and the person starting it is having some health issues so things are delayed.  I might start the other half of his curriculum sooner.

The summer has been nice, I am ready for life to settle back into a schedule.