We tried to put on his SMOs, which I was never happy with the new design. They didn't fit right and them on messed up his gait even more. I talked to the therapist and we both agreed it was time to get Matt a new pair.
The problem with SMO's, I am not a good mother of a SMO user, at first I was but over time we have come to realize SMOs only help in the moment. For most people they are part of a healing process to retrain and gain strength, for Matt they fix his gait in that moment, and his gait fixes on his own during progressive periods with or with out the braces. We defiantly don't want to advertise this though because custom SMOs are not cheap and insurance won't want to pay for them for casual use. During periods of regression they do help a lot.
This year seeing a physical regression starting and already being in an artic regression it leads me to wonder, did his first regression have a physical aspect we just missed? Matt was 14 months old at the time, he had been walking for 4 months and he had never become a stable walker, people would stop and ask, "is he just learning to walk?" and I would say no he has been walking for months. I remember sitting in the living room with the entire ECI team and they were astonished to keep seeing this cute little boy fall every few steps. It was almost comical. Looking back I really can't say if it got worst when he regressed, it felt so much like autism that it didn't seem like it could be something else, and autism doesn't have physical regression.
I guess this is another answer we will never know.
Sorry I have been so distant lately, I am always reading blogs, I just haven't been commenting as much, for some reason this period of regression has really gotten to me and I am just bummed. I am hoping to snap out of it soon. The end of June is a very busy month for us, lots of specialist including the one in Austin and even Matt's SSI hearing.
I have already set up an appt for Monday after noon to go in to get fitted for new SMOs. I am really hoping they have dinosaur transfer paper, I don't remember seeing it in the past but he wasn't interested in dinosaurs.