Wednesday, September 15, 2010

Terrified

Nothing more, in less than 9 hours we see the neurologist. It isn't even the testing and I am so nervous. I just don't know how I am going to get through this.

Monday, September 13, 2010

Three specialist in one week

Last week we noticed Matt start squinting a lot, with his physical regression this is a pretty big deal. We don't know if the two are related but it they are, they both point to a brain tumor. Very scary!
I called the doctor at midnight the on Wednesday night when we noticed it. (In my defense I did just leave a message and didn't expect them to wake the doctor) Thursday we had an appt to see the doctor. There is actually a new doctor in the practice who we were meeting for the first time that I really liked. She seemed really concerned and sent us for blood work. She said we needed to wait to see the neurologist to get the scans because a neurologist would have a better idea of where to be looking and they want to do as few scans as possible because he has to be sedated.
She sent us to the hospital to get the blood work done so we could get the results sooner.
The blood work came back normal, so that is good. I am still very nervous about the scans. The doctor also referred us to see a ophthalmologist.
So tomorrow we are seeing the ophthalmologist, the Thursday we are finally seeing the neurologist. Then next Monday we are seeing a developmental pediatrician. The developmental pediatrician isn't because of the current issues, we have been on the wait list for a year and it is finally our time to see her, but it will be nice to get her opinion on the current situation.
I am a wreck this week, I can't wait to get past all of this, and I just pray that everything turns out okay.

Tuesday, September 7, 2010

Got this from Michelle.

The Good, The Bad, The Ugly

The Good
Matty - Matty is amazing and I love him so much more every day. He is so cute and loving. I am just so amazed by everything he does. Even when he is being bad, he is just so cute!
Matt's speech is getting so much better, I am amazed, in January he couldn't say 15 worlds and couldn't even point to one body part, and now tonight he said a 4/5 word sentence! So very amazing!
The power is back on, today we had no power for 7 hours, it really sucked and right now I am sitting at a computer, watching tv, with the lights and a/c on.

The Bad
So stressed out about Matt's regression, I am trying to keep busy so time can speed up and hopefully before I know it we will be seeing the nerologist.

The Ugly
Due to the stress in the bad, I haven't been cleaning my house and I have been stress eating. Neither one are very pretty.

Wednesday, September 1, 2010

A New Level of Stress

Last Thursday lingering thoughts joined together and I realized that Matt is regressing physically. The last few weeks I have noticed he has changed physically, I wondered how it was possible with him starting physical therapy, there is no reason he should be regressing. But he is.
He isn't as active as he used to be, he used to run around from the time he woke up to the time he went to sleep, now he sits around about 50% of the time. He even stopped liking the wiggles and I am wondering if it is because he want to get up and dance anymore.
He is have trouble walking, it started in April when he would get tired and now it is all the time. He has actually been casted for braces to try to help his walking.
His balance is getting worse, when he goes to stand up he falls down and when he is walking he falls down a lot.
He doesn't climb the baby gate anymore.
He only climbs the stairs about 70% of the time.
There is more but I want to move on.
On Thursday I called Matt's OT and I asked her what she thought, she told me I should call his doctor so I did. It was about 4:30 when I called and the doctor called me back about 7pm. We talked for a while and he seemed kind of worried and said he would put in a referral to a neurologist. He told me if there was a long wait he would try to get Matt a faster appt but he said it wasn't an emergancy but he did want him to be seen sooner. He even told me if I hadn't heard from the nurse by 12 noon the next day that I should call them.
The next day I called the nurse and she had put the referral in but the normal wait was not until December.
On Monday I got a call from the neurolgist's office and they set an appt for Sept 16... 15 days away now. It seems so long and I am so worried.
I know that there is a good chance it is nothing, I do have faith that everything will be okay, but I still have so much fear that things might not. I fear that it could be something bad, and I am even nervous just about the testing that my son is going to have to go through.
If you are reading this and you are a praying person, please pray for my son and please pray for me as I wait and worry the next two weeks.

Wednesday, August 25, 2010

Great Christmas present and give away at Salsa in China

Yesterday M2 at Salsa In China wrote a review on the PlasmaCar. This is such a neat idea. It is a car that is run by kid power. It looks like so much fun. You can start using it at 3 years old and can hold up to 120 lbs. This seems like a great Christmas present and will most likely find a place under our tree this year. I love it!

Head on over to Salsa in China, this week there is a giveaway that you can enter to win one of these cool cars.

Sunday, August 22, 2010

Matty Baking for the First Time!

About a month ago we got our learning tower. I love it! Since we got it Matt plays on it all the time. It really does make cooking easier. Matt hasn't really helped much until today but it has been nice to have him stand on it and do a craft or play with play-doh while I cook.
Today I decided that we would make chocolate chip cookies together. It was so much fun. Matt was very patient and helpful. It is amazing to see how far he has come. His receptive language has just increased so much. So when I told him wait, he understood that he needed to wait etc.
Here are some pictures of our cookie adventures.

















Thursday, May 27, 2010

June 8

June 8, less than 2 weeks away now is when Matt goes back to the Autism Community Network for testing. I am very anxious about this, I am excited for them to see his progress.. .boy has be progressed but nervous about what they are going to say. I don't think Matt will be dx with Autism , he has just made so much progress, but I can't imagine not having a PDD dx, he still has so many issues. Sensory issues, communication issues, issues with change, etc. Last year I really couldn't have imagined how far Matt could improve in a year but I still feel like Matt will never be truly normal. He is just different.

Monday, May 24, 2010

No Better Time

I have really missed blogging, so I am back and I will try to keep it updated. So much has happened. Matt has made major improvements! He can repeat 2 word and can count to 10 (with some prompting). He still doesn't have very much spontaneous speech but his improvements are amazing!
Matt will have his follow up analyzes at the Autism Community Network on June 8th. I can't wait, I am not as nervous as last time but I am so anxious to see what they have to say. I am also excited for them to see his progress. I know they will be excited. It is amazing to see what can be done with early intervention.
This week I have been wicked sick, it has put a damper on everything, and even though it is just a sickness it has made me sadder than I have been since my infertile days. I haven't been able to talk or even play with Matty and it has made me feel like a failure.
Since I am sick I will say good night for now, but I will try to post tomorrow. Now it is time to go find some new active blogs, I don't even know where I fit in in the blog worlds anymore.

Friday, March 5, 2010

Morgan's Wonderland

Today we got to visit Morgan's Wonderland. Not all of the attractions are open yet, but we had an awesome time and I felt very privileged to get to go. I went this morning because I am going to volunteer and they said it was a slow day today so I asked if I could make a reservation and come back with my son so I could explore and they said of course.
It was nice it was slow, Matt has really regressed socially and if there had been a lot of people I think it would have taken him even longer to warm up. Even today with minimal people there he was still scared of the people he did see and would back him self away or put himself in a corner.

The Carousel - this thing is awesome, even the benches go up and down and there is an animal that is cut in half so wheel chairs can be rolled in between and they also get to go up and down and around.
Matt didn't care too much for it, he would sit next to me on the bench but was scared of the horse, the crew was very nice they told me we could ride a few times so I could try to get him used to it. We rode once on the bench then I tried to move him to a horse thinking if he got on he would like it, about a second after they turned it on he started shaking and freaked out so I took him off and we sat on the bench the rest of the ride.

This is the water play area, Matt loved the water guns, the water area has so many levers and buttons and they all do different things. This will be really nice on hot days.

This is all different areas of the play structures. Everything was so neat about it... I can't even go into all of the details. All of the walk ways on the play structure were big enough for a wheel chair and they had this really neat area that sways. Matt loved it!

This is the music garden. Matt had a blast, he ended up losing interest when people came over and started chatting, but I know as he grows he will really love this area.


The Warf - Was awesome! There is a beautiful lake in the middle of Morgan's Wonderland, completely fenced in. Since Matt is a runner this is the closest he has been to a lake since he regressed. He loved to look at the water and we was amazed to see a duck so close. The lake is really amazing... there is no other lake I know of that is completely fenced in so, so many children like Matt don't get to experience nature like this. It was mine and Matt's favorite part of the day. If it isn't enough we got to out on the warf it also had awesome water cannons that even Matt was able to turn on because it goes with just a push button and it had electric boats.

There is so much more there that we didn't get to see, I am looking forward to going back again soon. Hopefully since Matt has been once and had fun, in the future when we go again and there are more people he will remember the fun and not be so reluctant.

Sorry the picture quality is so bad, I left my SD card in my laptop so I had to take pictures with my phone.

Sunday, February 28, 2010

My Day in Photos

10:30am - Woke Up, Matt was still sleeping so I checked
my e-mail.

11:30am - Picked out Matt's outfit for the day

12:30pm- We were waiting for Kevin so we could go run some errands.

1:30pm - We drive by a furniture store all of the time and we decided to go in and check in out, this was a couch we are thinking about.

2:30pm - Denny's for lunch... yummy! Matt wasn't happy being in a high chair.

3:30pm - At PetCo buying turtle supplies and fish. (At a birthday party we went to on Friday night our friend had a turtle in a fish tank with fish and had no way for him to get out of the water, so we rescued him and needed to buy some supplies.)

4:30pm - Floating the new fish. We have had the tank for over a month but Kevin has been working so much this is only the second round of fish to be introduced. Now we have 8 fish! YEA!

5:30pm - Matt was down for his nap, I was playing with some new scrapbooking software. Not the one I used to create these.


6:30pm - Matt woke up from his nap

7:30pm - Matt watched the Wiggles while I made dinner.

8:30pm - Matt got into the bath

9:30pm - Matt finished his bath, he took a really long bath, I let him because you are only young once.

10:30pm - Went to HEB to get a few things like milk. HEB is our grocery store, they have this cute little crane game for the kids, it is free and a great treat to encourage kids to behave.

11:30pm - Matt played in his room.

12:30am - Matt is finally asleep

1:30am -wishful thinking, I will be in the shower, which would mean I am done blogging, already talked to my husband about plans for tomorrow, and will get to go to sleep soon.

Jumping Back with a Game

Stole this from Searching For Sophie
FOODOLOGY:
What is your salad dressing of choice? Italian
What is your favorite sit-down restaurant? Olive Garden but Zios was excellent the other day in Houston
What is your favorite fast food restaurant? Sonic
What food could you eat every day for two weeks and not get sick of? Tacos (mainly bean and cheese on really good tortillas)
What are your pizza toppings of choice? Sausage and Pepperoni (together)
How many televisions are in your house? 3
What color cell phone do you have? Silver
BIOLOGY:
Are you right-handed or left-handed? Right
Have you ever had anything removed from your body? tonsils, babies
What is the last heavy item you lifted? Don't remember Unless Matty counts - he gets heavy after hours
Have you ever been knocked unconscious? No
Have you ever fainted? Nope
BULLCRAPOLOGY:
If it were possible, would you want to know the day you were going to die? as long as I knew it wasn't going to be traumatic or hurt
If you could change your name, what would you change it to? I don't think I would change my name, when I was younger I hated my name but over the years it has grown on me.
How many pairs of flip flops do you own? about 5, will probably have more in the next few months
Last person you talked to? Told Matty Good Night when I tucked him into bed
FAVORITOLOGY:
Season? Fall
Holiday? Halloween (but my favorite time of year is Christmas, Christmas Day is kind of sad it is over, except for this year, I couldn't wait for it to be over this year)
Day of the week? Don't have one at this time in my life
Month? December
Color? Green
Drink? Diet Big Red or Diet Doctor Pepper - Love, Love, Love Cherry, Vanilla, Diet Dr Pepper from Sonic
Alcoholic? Screwdriver
CURRENTOLOGY:
Missing someone? Yes... always
What are you listening to? Friends (The one with the nap partners)
What are you watching? Same
Worrying about? Sleep - I have had a lot of trouble sleeping lately
What’s the last movie you saw? Watched Lovely Bones tonight... missed part of it because I was sterilizing sippy cups
Do you smile often? Yes.. all the time even when I am angry which sucks because people don't take me seriously when I am smiling
If you could change your eye color what would it be? wouldn't I love my eyes
What’s on your wish list for your birthday? For Matt to succeed in life no matter what his challenges are, and for me to be there to help him a long the way
Can you do a chin-up? Not if my life depended on it.
Does the future make you more nervous or excited? A little of both.. I never know what tomorrow is going to bring with Kevin's business or Matt
Have you been in a car wreck? yes... I hate car accidents
Have you caused a car wreck? Nope
Do you have an accent? Nope.. .try not to
Last time you cried? sometime this week
Plans tonight? Sleep
Have you ever felt like you hit rock bottom? Yes.
Name three things you bought yesterday? spider man underoos, spider man sticker, spider man cup - all for a 6 year olds birthday party
Have you met someone who changed your life? Yes
For the better or worse? Both
How did you bring in the New Year? It took me a while to remember... we spent it with Brackie and the girls - shortly after midnight Matt started vomiting and that lasted all night.
Would you go back in time if you were given the chance? No
What songs do you sing in the shower? Wheels on the Bus, Itsy Bitsy Spider, head shoulders, knees and toes
Have you held hands with someone today? Not sure
Who was the last person you took a picture of? Matt
Are most of the friends in your life new or old? Old- sorry guys we all know we are getting up there in age
Do you like pulpy orange juice? Sometimes... after Karen (the naked ovary) wrote about her husband finding rat bones in his OJ I have a hard time enjoying and OJ, which sucks even more if you noticed my favorite drink
Last time you ate peanut butter and jelly? Last week.. I love uncrustables
What were you doing at 12 a.m. last night? Don't remember
What was the first thing you thought of when you woke up? I hope Matt is okay.. (it was his first night back in his room.

Tag, you're it.